Sleep was an important part of my recovery from MS described in my book at https://www.amazon.com/dp/B07D7JBZ5L/ref=cm_sw_r_fa_awdo_t1_.pDiBbVDAK0S4
Mayzent is taken orally. It has been shown to slow the progression of disability progression in MS in people who are starting down the road of secondary progressive MS. This article gives the information. I still think that Ocrevus might be best although I know of no direct comparisons. I would like to see comparative studies or meta reviews of the efficacy of Ocrevus compared to Mayzent and other MS drugs. See
The holy grail is remylination of multiple sclerosis damage. See
“Novel regeneration (remyelination) with stem cells and good antibodies in patients. These therapies may help nerves recover normal signaling functions and improve movement and cognition in patients with MS and other autoimmune neurological disorders.”
See my book at http://www.msmissionremission.com
I attended a seminar by Jungian analyst Jean Shinoda Bolen MD about twenty years ago. I wrote her a letter asking about how to cope with the multiple sclerosis I had at the time. She responded with a hand written two page letter.
The Dali Lama at one point chose her as one of twenty psychiatrists and psychologists to attend a tour. A main value of Buddhists is compassion. It is easy to see why he chose her.
Her Goddesses in Every Woman and Gods in Every Man books helped me learn to interpret dreams. She has written many books. As a psychiatrist, she used to do group therapy with people who had cancer (the book is Close to the Bone). I hope to be more like her someday.
I recently had surgery on my eyes for double vision which I trace back to probably being caused by MS. Visual symptoms were the first thing I noticed in my late twenties which I think was a precursor to being diagnosed with primary progressive multiple sclerosis at age 36.
Right after the surgery, the double vision changed. Over the course of three weeks, it merged into unitary singular vision. They do not operate on the eyes themselves. They operate on the small muscles controlling those movements. They ” tighten the cables” leading to your eyes if you will. Anyway, you are put under anesthesia and released the same day so it is outpatient surgery.
I have excessive skin on my eyelids which I think contributed to the double vision (if you put pressure on the outside of your eye with a finger, it distorts your vision which is a similar effect). Surgery can remove the excessive skin safely, so I think I will do it. Anyway, for 2019, “the eyes (ayes) have it.”
For the next few days, Amazon is giving the book away free at https://www.amazon.com/dp/B07D7JBZ5L/ref=cm_sw_r_fa_awdo_t1_.pDiBbVDAK0S4
A radical new treatment for multiple sclerosis is on the way. Researchers noticed that a leukemia treatment that works also practically cured MS patients who had both leukemia and multiple sclerosis.
Seventeen of the sample of 24, which is 70% of the people who used this treatment, had marked improvement in their MS symptoms (such as being able to return to work). One of the 24 MS patients died.
First bone marrow cells are extracted from the patient. Then all the immune cells in the patient are killed with toxic chemotherapy. The bone marrow sample is then purged of cancerous cells. The final step is the bone marrow sample is injected back into the patient to reboot the immune system of the MS sufferer.
For more information about this treatment, go to https://www.newscientist.com/article/2093280-extreme-cure-for-ms-reboots-immune-system-but-can-be-fatal/
Mononucleosis, the “kissing disease” has been recently linked to lupus, multiple sclerosis, diabetes (type I), inflammatory bowel disease, rheumatoid arthritis, celiac disease, and juvenile idiopathic arthritis. These were added to the list of diseases mononucleosis is related to. https://www.sciencedaily.com/releases/2018/04/180416121606.htm
Mononucleosis is caused by the Epstein Barr Virus (EPV). This virus is in the saliva. Over ninety percent of people in advanced countries have the virus by age 20.
Poor countries typically have ninety percent of their population infected by the age of two.
It is usually no big deal in most cases–the person feels tired for two weeks and the recovers: however, serious cases can last for months. The illustration above predicts the associated symptoms.
It is my and others belief that major disturbance of the immune system makes getting multiple sclerosis more likely. People who live in cold climates, who have more exposure to colds, flus, and mononucleosis, are more likely to get MS. I believe repeated assaults on the immune system makes autoimmune diseases, like those above, more likely.
See how I dealt with MS at: