Lemtrada–Stopping the MS Attack?

Lemtrada is a once a year infusion that may slow or possibly stop the progression of multiple sclerosis. It is a once a year infusion, but the first year you receive infusions for five days in a row. Subsequent infusions are once a year but occur for three days in a row.

Insurance companies paint it as being for relapsing-remitting multiple sclerosis, MS, after two ms drugs have failed. That is because there is some risk to the infusions.

It reminds me of the procedure used that stopped my MS in its tracks in the early 2000s. I was given big bags of steroids for three days in a row, which dampens the immune system, while also physically making your body stronger. On the third day the infusion included Cytoxan which modifies your immune system.

Because your body is revved on steroids, the immune system modification occurs quickly. This was done every three to six months, depending upon how I was reacting. It worked. My MS symptoms remitted, and have continued to improve until the present.

It is my guess that the Lemtrada may be working similarly. There was a lot of risk with the procedure I went through, and there is risk with Lemtrada. I believe it may be risky because both procedures basically turn your immune system off temporarily, followed by the immune system being less hyperactive about attacking your nervous system.

Both procedures use steroids heavily, which dampens the immune system. I had a severe infection after one set of infusions that landed me in the hospital for a week which I recovered from.

I continued to improve using once a week Tysabri self-injections, which I did for almost ten years; however, there is a danger to using Tysabri. The danger is that you may activate a latent JV virus which then causes multiple myelomas in your brain. They have a test that indicated I was getting close to JV virus activation, so I fortunately was able to switch to the new 800 pound gorilla in the fight against multiple sclerosis, Ocrevus.

The first time you take Ocrevus, it is infusions given two days in a row. The infusions last for six months. Subsequent infusions occur every six months and are for one day, with the infusion taking three or four hours.

My health has steadily improved since my late fifties. At 66, I am in better health than I was in my thirties. I developed MS in 1991 right before the first effective medications for multiple sclerosis were developed. Ocrevus is the best one by far. Tysabri helped a lot, but I noticed that I was more likely to get a cold or the flu on Tysabri. That has not been the case with Ocrevus. Ocrevus is for both primary progressive multiple sclerosis and relapsing remitting MS.

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Surgery with your eye muscles bilaterally to heal double vision from multiple sclerosis MS

Looking at Life Straight-on

I recently had surgery on my eyes for double vision which I trace back to probably being caused by MS. Visual symptoms were the first thing I noticed in my late twenties which I think was a precursor to being diagnosed with primary progressive multiple sclerosis at age 36.

Right after the surgery, the double vision changed. Over the course of three weeks, it merged into unitary singular vision. They do not operate on the eyes themselves. They operate on the small muscles controlling those movements. They ” tighten the cables” leading to your eyes if you will. Anyway, you are put under anesthesia and released the same day so it is outpatient surgery.

I have excessive skin on my eyelids which I think contributed to the double vision (if you put pressure on the outside of your eye with a finger, it distorts your vision which is a similar effect). Surgery can remove the excessive skin safely, so I think I will do it. Anyway, for 2019, “the eyes (ayes) have it.”

For the next few days, Amazon is giving the book away free at https://www.amazon.com/dp/B07D7JBZ5L/ref=cm_sw_r_fa_awdo_t1_.pDiBbVDAK0S4

Review of Multiple Sclerosis Mission Remission

“Multiple Sclerosis MISSION REMISSION” by Dr. Fox was both a pleasure and an eye opener to the many aspects of how MS develops and can be managed. The deep insights he provides into his personal and family dynamics are powerful indicators of how dis-ease can be instilled and manifest later in various ways, from psychological to physical trauma. His ingenuity, spiritual insights and dogged determination to regain his life from the debilitating toll of MS is both inspirational and instructive. A very good read from many perspectives! -Dale Miesen, BA, Psycholgy & Philosophy”

The pain of a MS dysphonia flareup

Actress Selma Blair describes the many years it took for her multiple sclerosis to be diagnosed in this interview:
https://www.goodmorningamerica.com/wellness/story/selma-blair-shares-candid-details-life-ms-multiple-61352124
She needs prednisolone infusions for the flare up. If I were her, I would use the once every six months infusion of Ocrevus. In any case, she should consult with her doctors regarding either of these possibilities as each case has its own unique features. She could avoid reinventing the wheel by reading my book “Multiple Sclerosis Mission Remission: Healing MS Against All Odds” which is available on amazon and is described at http://www.msmissionremission.com

Update on my MS

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I have had primary progressive multiple sclerosis for 28 years. Following a series of medical, alternative and spiritual interventions, the MS went into full remission 13 years ago. I work full time and have written two books. I excercise and can run if I have to.
I just received my third infusion of Ocrevus which you only need to do every six months.

My writing continues to be legible and I have had no significant side effects from the Ocrevus medication. Part of the reason I am writing this is to express my thanks to all the people and to the universe/God (they are one and the same in my mind) who helped create this miracle.

Whenever you talk to enlightened prople who are “awake,” it is virtually unanimous that gratitude is a very important part in continuing a creative and positive dance with the universe. When working on manifesting a change in your life, many suggest that expressing gratitude as if the miracle has already occurred is most effective.

In my world, it has been most effective to condition myself to at least allow for the possibility that the miracle could occur such as what follows:
“I am willing to consider that I could allow myself to learn that the miracle could occur.”

For myself, I have found that allowing for the conceivable possibility that a miracle could occur is what has mainly helped me. For me, it is more believable and a lot less stressful than proclaiming that the virtually impossible has already happened. Regardless, it is important to maintain a positive attitude of gratitude so that the best possible outcome for all can be achieved.

You can listen to how I did it at https://www.audible.com/pd/Multiple-Sclerosis-Mission-Remission-Healing-MS-Against-All-Odds-Audiobook/B07KFPTRTX

Audiobook sample of MS book

The beginning of Multiple Sclerosis Mission Remission: Healing MS Against All Odds can be heard at the following link:

The audiobook can be purchased at https://www.audible.com/pd/Multiple-Sclerosis-Mission-Remission-Healing-MS-Against-All-Odds-Audiobook/B07KFPTRTX

Availble as an audiobook

Multiple Sclerosis Mission Remission is also an audiobook at https://www.amazon.com/gp/aw/d/B07KFQD9DV/ref=tmm_aud_title_0?ie=UTF8&qid=&sr=

Multiple Sclerosis Mission Remission is now also available as an audiobook!

“Multiple Sclerosis Mission Remission” is available as an audiobook at:
https://bookmate.com/audiobooks/ZWaotJbv?dscvr=top_result

The effect of heat on multiple sclerosis, MS

Multiple-Sclerosis-heat-intolerance
Post 11: When MS is hot, you are not well 

For myself, I live in Phoenix, Arizona where temperatures in the summer are almost always over a 100゚F.  During the hot summer months, the temperature in my closed garage is around a 120 ゚F or more.  I used to feel like somebody wound up and punched me when getting out  of my car when my multiple sclerosis was active. Since my MS went into remission about ten years ago, The heat doesn’t affect me nearly as much.

Myelin helps nerve impulses travel faster down your nerve fibers. It is like the insulation covering an electrical cord. Because multiple sclerosis damages the myelin, the insulation covering your nerve fibers, the impulses travel slower. The damaged nerve fibers are especially susceptible to heat, and then conduct impulses even slower when it is hot for the person who has MS.

Read the story of the many things I did to go into remission from MS at

Eggs, legumes, vegetables, fish and chicken in preventing and/or helping multiple sclerosis

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https://m.medicalxpress.com/news/2018-08-diets-high-vegetables-fish-multiple.html

Curtain University found th as t eating fish and vegetables may be less likely to contract multiple sclerosis. Specifically, legumes, fish, vegetables, poultry and egg consumption correlated with less risk of getting MS.

Smoking, glandular fevers, getting less sun, and low vitamin D intake are known to be associated with increased risk of contracting multiple sclerosis.

The Australian study studied the difference between a healthy diet consisting of the above healthy foods and a tragically flawed Western diet (which typically includes too much sugar and fat).

The study’s author, Dr. Black concluded that people eating a high amount of these healthy foods, like fish and vegetables, were fifty percent less likely to contract multiple sclerosis than people who ate a low amount of these foods.

The reference for this study is:
Lucinda J Black et al. A healthy dietary pattern associates with a lower risk of a first clinical diagnosis of central nervous system demyelination, Multiple Sclerosis Journal (2018). DOI: 10.1177/1352458518793524

Read about my miracle MS remission at