Sleep was an important part of my recovery from MS described in my book at https://www.amazon.com/dp/B07D7JBZ5L/ref=cm_sw_r_fa_awdo_t1_.pDiBbVDAK0S4
Mayzent is taken orally. It has been shown to slow the progression of disability progression in MS in people who are starting down the road of secondary progressive MS. This article gives the information. I still think that Ocrevus might be best although I know of no direct comparisons. I would like to see comparative studies or meta reviews of the efficacy of Ocrevus compared to Mayzent and other MS drugs. See
In ancient Greece, there were temples of healing that use dreams and dreams incubation for thousands of years to heal physical illness. I think I stumbled into using some of their methods, notably dream incubation. See
Present within most of these sleep temples were elaborate systems of fasting, dedication, lustration, purification, ritual drama, sensory deprivation or over-stimulation, invocation and dream interpretation. These institutions prevailed for thousands of years, so clearly the sleep temple methods were fruitful for many (there are countless testimonies and votive offerings proclaiming successful treatment) but how did they work? Would these old methods of dream incubation work today?
The practice of ‘Temple Sleep’ is well-evidenced in ancient Egyptian, Greek and Roman archaeology and literature. I believe the practice of ‘dream incubation’ reveals many secrets regarding the journey of human consciousness, the evolution of memory and language, the mind-body connection, the placebo effect and the unconscious mind’s potent response to imagination, story and symbolism.”
The dream incubation I used in my healing is at:
I attended a seminar by Jungian analyst Jean Shinoda Bolen MD about twenty years ago. I wrote her a letter asking about how to cope with the multiple sclerosis I had at the time. She responded with a hand written two page letter.
The Dali Lama at one point chose her as one of twenty psychiatrists and psychologists to attend a tour. A main value of Buddhists is compassion. It is easy to see why he chose her.
Her Goddesses in Every Woman and Gods in Every Man books helped me learn to interpret dreams. She has written many books. As a psychiatrist, she used to do group therapy with people who had cancer (the book is Close to the Bone). I hope to be more like her someday.
Lemtrada is a once a year infusion that may slow or possibly stop the progression of multiple sclerosis. It is a once a year infusion, but the first year you receive infusions for five days in a row. Subsequent infusions are once a year but occur for three days in a row.
Insurance companies paint it as being for relapsing-remitting multiple sclerosis, MS, after two ms drugs have failed. That is because there is some risk to the infusions.
It reminds me of the procedure used that stopped my MS in its tracks in the early 2000s. I was given big bags of steroids for three days in a row, which dampens the immune system, while also physically making your body stronger. On the third day the infusion included Cytoxan which modifies your immune system.
Because your body is revved on steroids, the immune system modification occurs quickly. This was done every three to six months, depending upon how I was reacting. It worked. My MS symptoms remitted, and have continued to improve until the present.
It is my guess that the Lemtrada may be working similarly. There was a lot of risk with the procedure I went through, and there is risk with Lemtrada. I believe it may be risky because both procedures basically turn your immune system off temporarily, followed by the immune system being less hyperactive about attacking your nervous system.
Both procedures use steroids heavily, which dampens the immune system. I had a severe infection after one set of infusions that landed me in the hospital for a week which I recovered from.
I continued to improve using once a week Tysabri self-injections, which I did for almost ten years; however, there is a danger to using Tysabri. The danger is that you may activate a latent JV virus which then causes multiple myelomas in your brain. They have a test that indicated I was getting close to JV virus activation, so I fortunately was able to switch to the new 800 pound gorilla in the fight against multiple sclerosis, Ocrevus.
The first time you take Ocrevus, it is infusions given two days in a row. The infusions last for six months. Subsequent infusions occur every six months and are for one day, with the infusion taking three or four hours.
My health has steadily improved since my late fifties. At 66, I am in better health than I was in my thirties. I developed MS in 1991 right before the first effective medications for multiple sclerosis were developed. Ocrevus is the best one by far. Tysabri helped a lot, but I noticed that I was more likely to get a cold or the flu on Tysabri. That has not been the case with Ocrevus. Ocrevus is for both primary progressive multiple sclerosis and relapsing remitting MS.
“Multiple Sclerosis MISSION REMISSION” by Dr. Fox was both a pleasure and an eye opener to the many aspects of how MS develops and can be managed. The deep insights he provides into his personal and family dynamics are powerful indicators of how dis-ease can be instilled and manifest later in various ways, from psychological to physical trauma. His ingenuity, spiritual insights and dogged determination to regain his life from the debilitating toll of MS is both inspirational and instructive. A very good read from many perspectives! -Dale Miesen, BA, Psycholgy & Philosophy”
I have had primary progressive multiple sclerosis for 28 years. Following a series of medical, alternative and spiritual interventions, the MS went into full remission 13 years ago. I work full time and have written two books. I excercise and can run if I have to.
I just received my third infusion of Ocrevus which you only need to do every six months.
My writing continues to be legible and I have had no significant side effects from the Ocrevus medication. Part of the reason I am writing this is to express my thanks to all the people and to the universe/God (they are one and the same in my mind) who helped create this miracle.
Whenever you talk to enlightened prople who are “awake,” it is virtually unanimous that gratitude is a very important part in continuing a creative and positive dance with the universe. When working on manifesting a change in your life, many suggest that expressing gratitude as if the miracle has already occurred is most effective.
In my world, it has been most effective to condition myself to at least allow for the possibility that the miracle could occur such as what follows:
“I am willing to consider that I could allow myself to learn that the miracle could occur.”
For myself, I have found that allowing for the conceivable possibility that a miracle could occur is what has mainly helped me. For me, it is more believable and a lot less stressful than proclaiming that the virtually impossible has already happened. Regardless, it is important to maintain a positive attitude of gratitude so that the best possible outcome for all can be achieved.
You can listen to how I did it at https://www.audible.com/pd/Multiple-Sclerosis-Mission-Remission-Healing-MS-Against-All-Odds-Audiobook/B07KFPTRTX
The beginning of Multiple Sclerosis Mission Remission: Healing MS Against All Odds can be heard at the following link:
The audiobook can be purchased at https://www.audible.com/pd/Multiple-Sclerosis-Mission-Remission-Healing-MS-Against-All-Odds-Audiobook/B07KFPTRTX
Vitamin D Mania!
Post 17: when getting your D is good
Neurologists are seeing the light regarding the importance of vitamins. I always took about 400 units of vitamin D. My neurologist recently recommended that I increase it to 20,000 units. They are getting research results implicating low levels of vitamin D with increased risk for multiple sclerosis. And beyond that, as noted in the chart above, low levels of vitamin D may play a role in many diseases.
See helpful healing to chronic disease described in my book “Multiple Sclerosis Mission Remission: Healing MS Against All Odds” available at amazon.com.