Lemtrada–Stopping the MS Attack?

Lemtrada is a once a year infusion that may slow or possibly stop the progression of multiple sclerosis. It is a once a year infusion, but the first year you receive infusions for five days in a row. Subsequent infusions are once a year but occur for three days in a row.

Insurance companies paint it as being for relapsing-remitting multiple sclerosis, MS, after two ms drugs have failed. That is because there is some risk to the infusions.

It reminds me of the procedure used that stopped my MS in its tracks in the early 2000s. I was given big bags of steroids for three days in a row, which dampens the immune system, while also physically making your body stronger. On the third day the infusion included Cytoxan which modifies your immune system.

Because your body is revved on steroids, the immune system modification occurs quickly. This was done every three to six months, depending upon how I was reacting. It worked. My MS symptoms remitted, and have continued to improve until the present.

It is my guess that the Lemtrada may be working similarly. There was a lot of risk with the procedure I went through, and there is risk with Lemtrada. I believe it may be risky because both procedures basically turn your immune system off temporarily, followed by the immune system being less hyperactive about attacking your nervous system.

Both procedures use steroids heavily, which dampens the immune system. I had a severe infection after one set of infusions that landed me in the hospital for a week which I recovered from.

I continued to improve using once a week Tysabri self-injections, which I did for almost ten years; however, there is a danger to using Tysabri. The danger is that you may activate a latent JV virus which then causes multiple myelomas in your brain. They have a test that indicated I was getting close to JV virus activation, so I fortunately was able to switch to the new 800 pound gorilla in the fight against multiple sclerosis, Ocrevus.

The first time you take Ocrevus, it is infusions given two days in a row. The infusions last for six months. Subsequent infusions occur every six months and are for one day, with the infusion taking three or four hours.

My health has steadily improved since my late fifties. At 66, I am in better health than I was in my thirties. I developed MS in 1991 right before the first effective medications for multiple sclerosis were developed. Ocrevus is the best one by far. Tysabri helped a lot, but I noticed that I was more likely to get a cold or the flu on Tysabri. That has not been the case with Ocrevus. Ocrevus is for both primary progressive multiple sclerosis and relapsing remitting MS.

Advertisements

Review of Multiple Sclerosis Mission Remission

“Multiple Sclerosis MISSION REMISSION” by Dr. Fox was both a pleasure and an eye opener to the many aspects of how MS develops and can be managed. The deep insights he provides into his personal and family dynamics are powerful indicators of how dis-ease can be instilled and manifest later in various ways, from psychological to physical trauma. His ingenuity, spiritual insights and dogged determination to regain his life from the debilitating toll of MS is both inspirational and instructive. A very good read from many perspectives! -Dale Miesen, BA, Psycholgy & Philosophy”

Update on my MS

dreams-pouring-out-of-sleeping-head.jpg
I have had primary progressive multiple sclerosis for 28 years. Following a series of medical, alternative and spiritual interventions, the MS went into full remission 13 years ago. I work full time and have written two books. I excercise and can run if I have to.
I just received my third infusion of Ocrevus which you only need to do every six months.

My writing continues to be legible and I have had no significant side effects from the Ocrevus medication. Part of the reason I am writing this is to express my thanks to all the people and to the universe/God (they are one and the same in my mind) who helped create this miracle.

Whenever you talk to enlightened prople who are “awake,” it is virtually unanimous that gratitude is a very important part in continuing a creative and positive dance with the universe. When working on manifesting a change in your life, many suggest that expressing gratitude as if the miracle has already occurred is most effective.

In my world, it has been most effective to condition myself to at least allow for the possibility that the miracle could occur such as what follows:
“I am willing to consider that I could allow myself to learn that the miracle could occur.”

For myself, I have found that allowing for the conceivable possibility that a miracle could occur is what has mainly helped me. For me, it is more believable and a lot less stressful than proclaiming that the virtually impossible has already happened. Regardless, it is important to maintain a positive attitude of gratitude so that the best possible outcome for all can be achieved.

You can listen to how I did it at https://www.audible.com/pd/Multiple-Sclerosis-Mission-Remission-Healing-MS-Against-All-Odds-Audiobook/B07KFPTRTX

Audiobook sample of MS book

The beginning of Multiple Sclerosis Mission Remission: Healing MS Against All Odds can be heard at the following link:

The audiobook can be purchased at https://www.audible.com/pd/Multiple-Sclerosis-Mission-Remission-Healing-MS-Against-All-Odds-Audiobook/B07KFPTRTX

Vitamin D Mania!
41698457001_5504692439001_5504681815001-vs
Post 17: when getting your D is good

Neurologists are seeing the light regarding the importance of vitamins. I always took about 400 units of vitamin D. My neurologist recently recommended that I increase it to 20,000 units. They are getting research results implicating low levels of vitamin D with increased risk for multiple sclerosis. And beyond that, as noted in the chart above, low levels of vitamin D may play a role in many diseases.

See helpful healing to chronic disease described in my book “Multiple Sclerosis Mission Remission: Healing MS Against All Odds” available at amazon.com.

Availble as an audiobook

Multiple Sclerosis Mission Remission is also an audiobook at https://www.amazon.com/gp/aw/d/B07KFQD9DV/ref=tmm_aud_title_0?ie=UTF8&qid=&sr=

What is an exciting new research finding for MS?

bbbcart
Post 14: Protein found may be involved in MS passing through the blood brain barrier

According to https://www.goodnewsnetwork.org/surprise-finding-could-lead-to-new-ms-treatments/

They found that peole with MS have more calnexin protein in their brains than other people. The thought is that if they can find a way to decrease calnexin, that it might be a way to prevent MS from passing through the blood brain barrier.

Mice studies seem to support the idea, but such results can be different with humans. Nevertheless, it is opening an important avenue, as there is much we do not understand about the blood brain barrier. I know that medications that allow vitamin B to cross the blood brain barrier, such as metafolbic and foltanx, have been helpful with neurological symptoms. Check with your medical doctor as to whether these medications could be helpful for you.

The brain is the last place you want MS to be at

The Author Is Interviewed by Psychologist Dr. David Van Nuys

button-support-SRRlogo
I was interview #606 on psychologist Dr. David Van Nuys’ http://www.Shrinkrapradio.com
See

What is good for skin may be good for MS

WaterFromPitcherPouredIntoGlass.jpg.653x0_q80_crop-smart(2)
A study involving MS patients with secondary progressive multiple sclerosis was conducted at the Oregon Health and Science University. People who took lipoic acid had less brain atrophy. There was less brain tissue loss with people who used lipoic acid compared to a control group. The results were promising enough that phase 2 studies are being conducted regarding the safety and efficacy of lipoic acid.

This study caught my eye because I use alpha lipoic acid because it is good for skin. I wonder if the alpha lipoic acid that I have been taking for years was one of the many factors that sent my primary progressive multiple sclerosis into remission. I also take DMAE for skin, but know of no studies regarding its effect on MS.

I think many healthy practices can combine to help MS patients. For example, it is recommended that people drink 8 glasses of water per day (this is especially true in Arizona where I live). You can see the many healthy practices I used at https://www.amazon.com/Multiple-Sclerosis-Mission-Remission-Healing-ebook/dp/B07D7JBZ5L/ref=mp_s_a_1_2?ie=UTF8&qid=1529367853&sr=8-2&pi=AC_SX236_SY340_FMwebp_QL65&keywords=multiple+sclerosis+Mission+remission

Best Selling Multiple Sclerosis Books

See https://www.amazon.com/Best-Sellers-Books-Multiple-Sclerosis/zgbs/books/282825