Lemtrada–Stopping the MS Attack?

Lemtrada is a once a year infusion that may slow or possibly stop the progression of multiple sclerosis. It is a once a year infusion, but the first year you receive infusions for five days in a row. Subsequent infusions are once a year but occur for three days in a row.

Insurance companies paint it as being for relapsing-remitting multiple sclerosis, MS, after two ms drugs have failed. That is because there is some risk to the infusions.

It reminds me of the procedure used that stopped my MS in its tracks in the early 2000s. I was given big bags of steroids for three days in a row, which dampens the immune system, while also physically making your body stronger. On the third day the infusion included Cytoxan which modifies your immune system.

Because your body is revved on steroids, the immune system modification occurs quickly. This was done every three to six months, depending upon how I was reacting. It worked. My MS symptoms remitted, and have continued to improve until the present.

It is my guess that the Lemtrada may be working similarly. There was a lot of risk with the procedure I went through, and there is risk with Lemtrada. I believe it may be risky because both procedures basically turn your immune system off temporarily, followed by the immune system being less hyperactive about attacking your nervous system.

Both procedures use steroids heavily, which dampens the immune system. I had a severe infection after one set of infusions that landed me in the hospital for a week which I recovered from.

I continued to improve using once a week Tysabri self-injections, which I did for almost ten years; however, there is a danger to using Tysabri. The danger is that you may activate a latent JV virus which then causes multiple myelomas in your brain. They have a test that indicated I was getting close to JV virus activation, so I fortunately was able to switch to the new 800 pound gorilla in the fight against multiple sclerosis, Ocrevus.

The first time you take Ocrevus, it is infusions given two days in a row. The infusions last for six months. Subsequent infusions occur every six months and are for one day, with the infusion taking three or four hours.

My health has steadily improved since my late fifties. At 66, I am in better health than I was in my thirties. I developed MS in 1991 right before the first effective medications for multiple sclerosis were developed. Ocrevus is the best one by far. Tysabri helped a lot, but I noticed that I was more likely to get a cold or the flu on Tysabri. That has not been the case with Ocrevus. Ocrevus is for both primary progressive multiple sclerosis and relapsing remitting MS.

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Surgery with your eye muscles bilaterally to heal double vision from multiple sclerosis MS

Looking at Life Straight-on

I recently had surgery on my eyes for double vision which I trace back to probably being caused by MS. Visual symptoms were the first thing I noticed in my late twenties which I think was a precursor to being diagnosed with primary progressive multiple sclerosis at age 36.

Right after the surgery, the double vision changed. Over the course of three weeks, it merged into unitary singular vision. They do not operate on the eyes themselves. They operate on the small muscles controlling those movements. They ” tighten the cables” leading to your eyes if you will. Anyway, you are put under anesthesia and released the same day so it is outpatient surgery.

I have excessive skin on my eyelids which I think contributed to the double vision (if you put pressure on the outside of your eye with a finger, it distorts your vision which is a similar effect). Surgery can remove the excessive skin safely, so I think I will do it. Anyway, for 2019, “the eyes (ayes) have it.”

For the next few days, Amazon is giving the book away free at https://www.amazon.com/dp/B07D7JBZ5L/ref=cm_sw_r_fa_awdo_t1_.pDiBbVDAK0S4

Review of Multiple Sclerosis Mission Remission

“Multiple Sclerosis MISSION REMISSION” by Dr. Fox was both a pleasure and an eye opener to the many aspects of how MS develops and can be managed. The deep insights he provides into his personal and family dynamics are powerful indicators of how dis-ease can be instilled and manifest later in various ways, from psychological to physical trauma. His ingenuity, spiritual insights and dogged determination to regain his life from the debilitating toll of MS is both inspirational and instructive. A very good read from many perspectives! -Dale Miesen, BA, Psycholgy & Philosophy”

Selma Blair’s severe MS

This shows you actress Selma Blair with multiple sclerosis which has distorted her voice. https://youtu.be/hsJOqH5BR3E

Multiple Sclerosis Mission Remission: Healing MS Against All Odds

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MS Healing Post 1:

The Thunder-clap 
 
I was having trouble with my eyesight. Double vision was new for me. I was dropping things I held for no reason. My balance was unsteady and I would sometimes fall down seemingly for no reason. My wife, being the board certified psychiatrist that she is, insisted that I consult with a neurologist.  Numerous tests and procedures were performed (to be described later). It was time for us to meet with the good doctor and hear the results.
When we went to obtain the results, the neurologist mumbled a few words at me and looked down at the floor while he spoke. I processed nothing of what he was saying to me. Repression is a remarkable phenomenon. He met with my wife for what seemed like a long time. Driving back from the doctor’s office to Arizona State University Student Health where my wife was the psychiatrist on the eating disorders team, Debby was uncharacteristically quiet.
When we drove into Student Heath and I stopped the car to let her out, I found out why.
“Well, I guess we will keep trying to figure out what is going on with me,” I said with resignation. “What are you talking about? The MS looks severe,” she said. Deborah never suffered a fool well.
“MS?”
With disbelief Dr. Deborah Brogan said, “Didn’t he tell you that you have MS, multiple sclerosis?”
“What?” I asked.
Debby, answered, “You heard me. The doctor said you have multiple sclerosis.”
So it began, my fifteen-year journey through purgatory. I thought I must have made serious mistakes in a previous life. At the time it seemed as good an explanation as any for why I contracted multiple sclerosis, MS.
 I have lost the bet. You thought that you had been so healthy most of your life—surely you would not contract a neurodegenerative disease.
____________________________

The above is an excerpt from my book “Multiple Sclerosis Mission Remission: Healing MS Against All Odds.” It is available at 

 https://www.amazon.com/Multiple-Sclerosis-Mission-Remission-Healing-ebook/dp/B07D7JBZ5L/ref=mp_s_a_1_2?ie=UTF8&qid=1529367853&sr=8-2&pi=AC_SX236_SY340_FMwebp_QL65&keywords=multiple+sclerosis+Mission+remission

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